Yesterday's radiation was cancelled due to equipment issues. We had a lot of rain and the site lost power over the weekend. I'm first appointment of the day (0730am) and by 9 they still hadn't gotten all the equipment "rebooted" and properly networked -- so we just tacked one on at the end!
Meanwhile, we did do a new CT Scan -- as "ordered" last Thursday -- due to weight loss in the tumor area and a desire to continue to be a precise with targeting as possible.
Today, I had normal Radiation at 7:30 and will do so the rest of the week.
Aside from tiredness -- which I attribute to waking up so much during the night -- I felt great today. I'm gettting up for 2 reasons. First, my mouth is dry, so about every hour I wake up to get a few sips of water to moisten things. Second, I'm hydrating so much that while I'm up, I might as well take a leak. Pretty sure this is just how it's going to be for a few months. Seem to have finally crested the hill on nausea. This means that at least I'm eating enough now that I'm not being woken by hunger pains.
Continuing to "hydrate" as the "big risk" from the Cisplatin chemotherapy is potential kidney damage -- so taking no chances there. However, another risk is hearing loss, and I'm definitely experiencing changes in my hearing -- it is becoming very sensitive....annoyingly sensitive. Going to research that some more and do everything I can to save the hearing.
Along the way, lots of friends are helping out with tips, research articles, etc with ideas helping me ride this out the best way possible. Thank you all!
I'm going to start building a list of things I'm going to do once this is over. Right now, I'm just waiting for the day when I will next enjoy a Campioni's Sausage and Extra Cheese Pizza! ....and a great Belgian ale....
Hey Richie - just read the scoop. We're proud of you. What a great gal that Joyce. And ps will help you with the beer & pizza :) Heidi & Tim
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