Sunday, March 3, 2013
Frustrating!
Last treatment was Wednesday. I am not feeling much better. If anything, it feels like they raised the intensity of the final treatments and I'm still getting residual effects.
Last Monday was the first that the skin on my neck showed signs of skin peeling (like with sunburn) -- and only in a few "high intensity" spots, right where the tumors were. Now, seven days later, pretty much my whole neck (front and sides) and upper chest are peeling and its pretty red / raw underneath. (they gave me cream with silver and lidocane in it to put on these areas)
The thing is, the docs always said that whatever it looks like on the outside, it is as bad or worse on the inside. So, the outside has continued to look/be worse since Wednesday's treatment, so I conclude the inside is, too, and it sure feels like it.
Now, the problem on the inside is a combination of just plain old pain in the throat -- for which I'm allowed to take oxycodone every six hours -- and the constant "mucous" (dead tissue?) that runs down my throat causing massive indigestion. I'm unable to "cough it up and out"....so it all gets swallowed. It seems to just build up in the stomach and digestive tract. Adding in that many of the meds I take (anti-nausea, oxycodone) are all known constipators and it's a full time job managing symptoms and side-effects. I hadn't "needed" anything for the pain until last Monday and I hope to be able to stop it, shortly.
I thought yesterday was "better" -- I was able to drink ( a mixture of sprite, water and club soda) all day long, maintaining my hydration with an IV. I also got more nutrition yesterday than any day I remember. But today was back to massive indigestion/nausea and a struggle to get fluids and nutrition. I'm still plugging away at it, but I'm definitely not on a "steady increase in health", yet.
For all those calling....I'm not answering, nor am I taking calls if someone else picks up the phone. It still hurts to talk - that has not changed. I'm often napping and when I'm not, I don't keep my phone with me. Joyce seems to have infinite patience though, as she'll pick up just about any phone call, God bless her.
Not sure how this week will go...if I'll notice "turning a corner" (heck, if I even will turn a corner). I need to try getting back to work as much as possible, so it'd be really nice if all this just cleared up and went away!
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